November 16, 2015
We recently returned home from two weeks away from home traveling to Disney World In Florida.
It was fun to travel and see the sights. It was good to get home, as well.
One thing that made our time in the parks easier was Disney’s Disability Access Service Card. This is available to anyone with a disability, visible or invisible. No medical documentation is required to obtain it.
It allows the holder and their party to go to a ride, and get a time to return, based on the current wait time. While waiting, it is possible to go and do something else until the return time. When this is combined with Fast passes, it really makes a big dent in wait times. There were very few times that we waited more than about 20 to 30 minutes. Most wait times weren’t really long, but some were up to 90 minutes.
We stayed on the property, which makes things easier, as travel is minimized
We stayed for 10 nights and spent each day in the parks. It may seem like quite a bit, but it gave us lots of time for get everything done, without too much rushing.
Disney isn’t cheap, but the experience us well done. Even when we had challenges, the cast members were very accommodating.
It will likely be a couple of years before we go again. It was a worthwhile trip .
October 3, 2015
I got a notification that it has been seven years since I started this blog.
So much has happened, it is hard to describe briefly. It has taken more than 500 posts.
In the last year, our lives have shifted toward advocacy for our children.
More to come on that front.
September 7, 2015
Fetal Alcohol Spectrum Disorder, or FASD, is a complex, often invisible disability, caused by alcohol consumption during pregnancy.
September 9 is a day set aside to increase awareness.
September 6, 2015
Some kids have been back to school for a few days, even weeks.
Ours go back on Tuesday. It’s hard to believe that summer is fading away.
Before we know it, leaves will be falling. Not too much after that, it will be snow
For now, we will have to enjoy the last bit of warm weather.
August 3, 2015
There are some seasons of life that are exhausting.
I have heard it said that the days are long and the years are short with young kids.
Don’t be afraid to ask parents of young kids, especially if they have kids with special needs, if they need to talk, or have a break. You have no idea the encouragement it could make to someone who may be hanging by a thread.
July 21, 2015
Words are powerful.
The old rhyme goes…
Sticks and stones will break my bones, but names will never hurt me.
That is not at all true. Words hurt far more than we admit.
We received a diagnosis of FASD, or Fetal Alcohol Spectrum Disorder earlier this spring.
The diagnosis opens the door to getting supports in the school system. It can be a challenge getting access, as there are many needs and limited resources.
What he wants to do is feel normal.
For everyone, that is the deep, inner cry of our soul — to fit in, to be valued, to connect with others, to feel normal–whatever “normal” is.
July 19, 2015
I haven’t had much to say lately. Life has been bush, but I’m processing lots on a personal level that isn’t necessarily ready to go out to the world.
June 24, 2015
We live in a complicated world.
One of my co-workers has a child fathered by a man who has not exactly been supportive of his son. It is a long, and unfortunately, fairly typical of a male who cuts and runs when things get tough.
Since then, there is another man that has come into her life, and is a true father and daddy to her son.
The boy’s biological father expresses a bit of an interest around Father’s Day, but it appears to be out of jealousy for the real father figure.
One of the best ways I have heard the immature grown up male described is a “boy that can shave”. I’ve heard Matt Chandler of the Village Church in Texas use that term. I’m not sure if it is originally his, but it sure is accurate.
We exchanged a few texts, and commented about the difference between a father and a dad; alternatively the difference between a man and a boy that can shave.
It can take a few seconds to become a father. Being a dad is a 24/7, 18 plus year commitment.
May 21, 2015
May seems to have been a really busy month.
We have finished up one study. We are waiting to find out about another. Appointments are happening in many places. And that is for the kids.
My dad has been having someundiagnosed pain in his leg for a few months. After being boun around for months, he is finally seeing somedifferent doctors. It looks he is headed for surgery in the not too distant future.
Right now we are living the sandwich generation.
April 28, 2015
April 27, 2006.
It was a day that changed our lives forever.
At the same point in time, our four year long quest to become parents had ended, and our journey as parents began at the same time, as our new baby was delivered.
And the adventure continues.