Archive for the ‘Special needs’ Category

What can I learn from my son about persistence

September 3, 2016

Our youngest son is six, but resembles a three year old in many ways   

After a particularly long day, I am thinking back about positives in some challenging, even irritating moments. 

  1. Pursue what you love to do, no matter what. He is an outdoor kid. He loves to go biking. It felt like he asked about 10,00 times if we could go biking. No matter how many times he as told no, or later, he kept on going until we went out. 
  2. Always find time to play. Another common request is to play with him. Very often, it is when w are tired, or not really wanting to. 
  3. Express your emirates   In theMidwest off the no, or later, he will often cry. He can go over the top sometimes, but there is no doubt h mo doubt how he feels. 

Just some thoughts from a weary parent. 

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Your child doesn’t look like they have FASD ….

May 24, 2016

So far, we haven’t run into any major problems with people in the school system having an issue getting FASD and the accommodations needed that are spelled out in the IEP. Until recently. But that’s another story …..

Here’s a link to a post on confessionsofanadoptiveparent.com by Mike Berry,  Your child doesn’t look like they have FASD. This post summarizes many things we have experienced, or will likely experience in the future.

The issue of invisible disabilities goes far beyond FASD, or the autism spectrum, or many other acronyms.

 

Exhaustion

February 8, 2016

There are some days, even weeks, that feel like they suck the life out of you.

Thus week has had a few of those. Some of the behaviours and defiance are just enough to make me wish I could crawl under a rock.

I was talking to another parent who has adopted a couple of kids with FASD. I commended her for making it. She said the teen years can be tough, especially with hormones and all of the fun that’s on with that.

There has been so much going on that I just feel wrung out.

In the past couple of months , I came across a new to me blog, Confessions of an adoptive parent, blogged by Mike and Kristin Berry.

They have been wiring for a while. They have adopted some kids with special needs, including FASD.

They have just launched a podcast called Honestly Speakimg, which can be found on their website. It can also be found on iTunes.

They also offer a free resource, “The Weary Parent’s Guide to Escaping Exhaustion”, for subscribing to their email.

I have found several posts to be right where I’m living at the moment.

Vacation at Disney World

November 16, 2015

We recently returned home from two weeks away from home traveling to Disney World In Florida.

It was fun to travel and see the sights. It was good to get home, as well.

One thing that made our time in the parks easier was Disney’s Disability Access Service Card. This is available to anyone with a disability, visible or invisible. No medical documentation is required to obtain it.

It allows the holder and their party to go to a ride, and get a time to return, based on the current wait time. While waiting, it is possible to go and do something else until the return time.  When this is combined with Fast passes, it really makes a big dent in wait times. There were very few times that we waited more than about 20 to 30 minutes. Most wait times weren’t really long, but some were up to 90 minutes.

We stayed on the property, which makes things easier, as travel is minimized

We stayed for 10 nights and spent each day in the parks. It may seem like quite a bit, but it gave us lots of time for get everything done, without too much rushing.

Disney isn’t cheap, but the experience us well done. Even when we had challenges, the cast members were very accommodating.

It will likely be a couple of years before we go again. It was a worthwhile trip .

Preview of school?

July 18, 2014

Our church ran our annual Vacation Bible Camp (or school as many are used to) this past week.

We enrolled Reid, as it was open to four-year olds.

He will also be entering Junior Kindergarten this fall.

We have had some meetings to help his transition into school be as successful as possible.

It was only three hours long.  There were several group activities.  Some were quiet, some ere not so quiet.  By the time the third hour rolled around, it was becoming quite a bit for Reid.  By the end of the week, I spent some time in the class with him to help keep him settled.

It seems that this may have been a preview of how school may go in the fall.

Spread the word to end the word

March 5, 2014

The first Wednesday of March each year designated as the day end the word – the r word.  Check out r-word.org for more details on there campaign.

At times, there has been lots of media attention for celebrities that have dropped the r bomb. Some are apologetic, and others are not.

We are fortunate that we have not been exposed much to the ugliness of labelling with of our child with special needs.  We hope it won’t happen, but it is likely.

Anything we can do to help increase awareness is worthwhile.

Special Hockey Game with the Rangers

January 28, 2014

The Kitchener Rangers hosted the Cambridge Ice Hounds and Kitchener Ice Pirates for a benefit game to raise money for the team.

It was a great time. Kids from thew age of four to their early twenties played against the Rangers for 25 minutes.  

The Rangers were great sports.  They allowed several goals and had several ridiculous calls against them.

 

Happy Fourth Birthday, Reid

January 23, 2014

It is hard to believe that Reis will be four tomorrow.

Most of the time, he is a delight. Other times, not so much.

So much has happened in his short life.

We have walked the road of fostering to adopt. We have walked along the road of open adoption.

As time has passed , we have become aware of some developmental delays.

He has really progressed over the past few months. His speech can be a not hard to get, but he tries really hard. He is a determine d little stinker. It serves him well most of the time. It will help him work to overcome his challenges.

I would think the highlight of this year was getting him involved with the Ice Pirates hockey program. In two months, Reid moved from being hesitant to go out on the ice to one who gets a skating aid and goes out in his own, and being a forces on the ice. Hopefully he is skating on his own by the end of March.

It will be an exciting year, as we figure out school and how to help integrate him into the school system. 

Another thought about developmental milestones

November 13, 2013

I read a post, Being a scary monster is a beautiful thing, this morning from Ellen at lovethatmax.com about how kids progress differently, especially when they have special needs.

It reminded me how much each child moves at their own pace.  Our own two kids are so different in their progress, as all are.

We have to remember that each child is different.  Milestones are based on averages.  An average is based the total of a lot, divided by the number.  By that very fact, everyone is above or below average.

We try to see everything as normal.  Really, nothing is normal.

Words – Do they really hurt?

November 10, 2013

I read a post on lovethatmax.com – a special needs blog about a “A shocking truth about the bestseller Wonder and its disability dis”

Ellen discusses a book called “Wonder”.  In her post, she mentions that this book has been well received, especially for promoting kindness.

However, there is one spot in the book where one child uses the word “retard” in a derogatory fashion.  For more details, refer to the other blog post.

Sensitivity to those with special needs has increased greatly over the years.

There is ongoing ignorance about how these words are hurtful, both to those with special needs, and love and care for them.

On the positive side, there has been a great deal of progress toward integration for those with special needs.  It is wonderful that many with special needs have been integrated into society, rather than warehoused or hidden away as they would have been in past generations.

There is still an ongoing struggle for integration and accommodation for those with special needs.  Unfortunately, this battle is still not over.


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